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The work we do is guided by people living with rare and devastating diseases. We are driven to continuously innovate and create meaningful value in all we do to help patients and families fully live their best lives.
SEE THEIR STORIES-
![Tanner, diagnosed with HPP at 4 days old, with a stuffed animal]()
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RENE, MOM OF TANNER
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HEAR HIS STORY ABOUT HPPTANNER
LIVING WITH HPP -
![Roberta, diagnosed with gMG at 16 years old]()
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ROBERTA
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永久免费梯子加速器 永久免费梯子加速器ROBERTA
LIVING WITH GMG -
![The Trendys, diagnosed at 17, 14, 11, and 9 with LAL-D]()
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LIVING WITH LAL-D
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LIVING WITH LAL-D -
![Chelsey, living with NMOSD, painting]()
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CHELSEY
LIVING WITH NMOSD
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LIVING WITH NMOSD -
![永久免费梯子加速器]()
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DONNAN
LIVING WITH aHUS
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LIVING WITH aHUS
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5
APPROVED MEDICINES7
RARE DISEASES & DEVASTATING CONDITIONS25+
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The Alexion Charitable Foundation awarded a total of $1.1 million in initial grants that align with its Rare Belonging® focus. Rare Belonging seeks to advance emotional well-being and educational opportunities and provide relief for critical needs for those living with or affected by a rare disease. Grant recipients include two leading nonprofits dedicated to serving the rare disease community: NORD and Global Genes.
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I feel like tomorrow I can do something, whereas before, I didn’t feel like tomorrow was possible.”JESSE LIVING WITH gMG
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